{"id":20633,"date":"2018-04-17T01:39:34","date_gmt":"2018-04-17T08:39:34","guid":{"rendered":"http:\/\/spijue.wpengine.com\/news\/our-daughter-lived-with-fasd-for-45-years-this-is-her-legacy\/"},"modified":"2018-04-17T01:39:34","modified_gmt":"2018-04-17T08:39:34","slug":"our-daughter-lived-with-fasd-for-45-years-this-is-her-legacy","status":"publish","type":"post","link":"https:\/\/www.juneauempire.com\/life\/our-daughter-lived-with-fasd-for-45-years-this-is-her-legacy\/","title":{"rendered":"Our daughter lived with FASD for 45 years. This is her legacy."},"content":{"rendered":"

Each of our children and grandchildren are a special gift. We love them for who they are, and taught them about faith and life. Each of them transforms us beyond our understanding.<\/p>\n

Parenthood is an unfolding of realities that break down stereotypes and assumptions. A young parent\u2019s statement: \u201cMy kids will NEVER do that!\u201d may slowly or suddenly change to \u201cI love and value them as they are.\u201d We may wish things were different, but unconditional love places equal value on each family member.<\/p>\n

Our daughter Tanya once wrote, \u201cOut of all the things I\u2019ve lost, I miss my mind the most.\u201d She taught us that people born with FASD, suffer from Schizo-Affective Disorder and substance abuse have much to contribute to society. She lived through homelessness, prison, unimaginable trauma and indignities. She was seen by most as a \u201cthrow away.\u201d Unconditional love could not remove the pain or heal the wounds, but love, caring and compassion were always needed. To us she was a precious gift from God.<\/p>\n

With all her difficulties, she described life this way: \u201cI was adopted by Laura and Larry Rorem at 8 months old. Their goal was give a child love and a home, teach about God, and give them values. I was raised by Laura and Larry Rorem. What I learned is \u2014 forgiveness, respect, kindness and God are ALL ABOUT LOVE.\u201d<\/p>\n

She was deeply aware of God\u2019s grace and unconditional love. During painful times, she sought a faith community seeking unconditional love and acceptance. Each congregation I served wrapped their arms of love around her and us. Prince of Peace in Michigan was there for her and us when we received her first mental illness diagnosis. The same was true during our 17 years at Shepherd of the Valley in Juneau. Upon retirement, Resurrection Lutheran accepted her and us with open arms. When homeless in Anchorage, she found her way to Central Lutheran. In spite of frequent psychotic breaks, faith gave Tanya the foundation to face challenges and obstacles that her \u201cno fault\u201d disabilities placed before her.<\/p>\n

Tanya illustrated and wrote about her experiences with mental illness. As a person of faith she stood up to many people who told her, \u201cIf you had more faith, you would not have these problems.\u201d Knowing this was wrong, she once wrote: \u201cWhy do I believe in God? For Strength! If I only needed faith, I would be lost. God is in my soul and gives me strength. His gift is unconditional love. That\u2019s what is special. I did not work for it. I received it. My faith is strong, so am I. God\u2019s gift is free.\u201d<\/p>\n

The last two years of Tanya\u2019s life was a struggle with terminal cancer. We had insightful conversations about death. She welcomed death, but was scared and wanted our presence on her long journey to her final breath. Unlike sudden death, cancer allows dying to be a deeply spiritual relationship experience that is purposeful, meaningful, and sacred for the one dying and their caregivers.<\/p>\n

Tanya\u2019s \u201cliving and growing\u201d in our presence is over. Her \u201cGood Friday\u201d life of struggle ended with us at her side \u201cletting her go\u201d into the loving arms of Jesus, her grandparents and aunt. Her physical presence ended on Feb. 23, but she lives on as a major influence on how we understand and value all people. She died during Lent, but we chose to celebrate her life in the season of Resurrection on April 21 at 1:30 p.m. at Resurrection Lutheran.<\/p>\n

We were privileged to be part of her journey. Her \u201cGood Friday\u201d life on the margins of society was one of hope in the promises of the Resurrection.<\/p>\n

Tanya taught us to better understand the \u201cthe least of these.\u201d She taught us to put ourselves in their footsteps with compassion \u2014 to enter into their pain and become empathetic, breaking down the \u201cwe\/them\u201d barriers and becoming \u201cus.\u201d She taught us to be understanding, compassionate, empathetic and passionate advocates. This is her legacy.<\/p>\n

As Jesus instructed, \u201cTruly I tell you, just as you did it to one of the least of these, who are members of my family, you did it to me.\u201d Matthew 25:40.<\/p>\n

 <\/p>\n


\n

 <\/p>\n

\u2022 Pastor Larry Rorem is a retired Evangelical Lutheran Church in America pastor living in Juneau. Laura Rorem is a member of the JAMHI Health and Wellness Board. Both are advocates for people with FASD and their families. \u201cLiving & Growing\u201d is a weekly column written by different authors and submitted by local clergy and spiritual leaders<\/b><\/p>\n

 <\/p>\n


\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Each of our children and grandchildren are a special gift. We love them for who they are, and taught them about faith and life. Each of them transforms us beyond our understanding. Parenthood is an unfolding of realities that break down stereotypes and assumptions. A young parent\u2019s statement: \u201cMy kids will NEVER do that!\u201d may […]<\/p>\n","protected":false},"author":107,"featured_media":20634,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_stopmodifiedupdate":false,"_modified_date":"","wds_primary_category":7,"footnotes":""},"categories":[7],"tags":[],"yst_prominent_words":[],"class_list":["post-20633","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-life"],"_links":{"self":[{"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/posts\/20633","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/users\/107"}],"replies":[{"embeddable":true,"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/comments?post=20633"}],"version-history":[{"count":0,"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/posts\/20633\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/media\/20634"}],"wp:attachment":[{"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/media?parent=20633"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/categories?post=20633"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/tags?post=20633"},{"taxonomy":"yst_prominent_words","embeddable":true,"href":"https:\/\/www.juneauempire.com\/wp-json\/wp\/v2\/yst_prominent_words?post=20633"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}